Treating Corticobasal Syndrome (CBS)

The story of Don Sladek's journey with CBS

Welcome

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I’m Chavonne Sladek, and I’m Don Sladek’s wife. Don is a Vietnam Era Veteran who was stationed in Southeast Asia and proudly served his country. We are not scientists or doctors; we are just regular people dealing with a terminal neurodegenerative disease called Corticobasal Syndrome (CBS). We are usually a private couple, but we are now compelled to share our unique story. It involves overcoming obstacles that effects all patients who has to go through the pharmaceutial industry to try and save their lives. 

What is Corticobasal Syndrome?

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It is not Parkinson’s Disease. It is a rare brain disease. Corticobasal Syndrome (CBS) is the clinical diagnosis of Corticobasal Degeneration (CBD), which is finalized at autopsy. CBS has no known cause, treatment, or cure.  It is also a tauopathy.  It affects nerve cells that control walking, balance, mobility, vision, speech, and swallowing. It is terminal, and the life expectancy is 6-8 years. Don is in year eight, and time is of the essence.

Why is this Situation Significant?

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The Treating Corticobasal Syndrome website was created after Don Sladek courageously and successfully participated in a Phase I trial with Biogen’s medication: BIIB092, Gosuranemab.  We, as well as Don’s neurologist, Dr. Yvette Borderlon from the University of California, Los Angeles, have applied to Biogen under the Right-to-Try Act and Compassionate Use. We have been denied four times. We are pleading for help to have Biogen revisit their policy.

What is the PACT Act?

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I’m Chavonne Sladek, and I’m Don Sladek’s wife. Don is a Vietnam Era Veteran who was stationed in Southeast Asia and proudly served his country. We are not scientists or doctors; we are just regular people dealing with a terminal neurodegenerative disease called Corticobasal Syndrome (CBS). We are usually a private couple, but we are now compelled to share our unique story. It involves overcoming obstacles that effects all patients who has to go through the pharmaceutial industry to try and save their lives. 

How to Help

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I’m Chavonne Sladek, and I’m Don Sladek’s wife. Don is a Vietnam Era Veteran who was stationed in Southeast Asia and proudly served his country. We are not scientists or doctors; we are just regular people dealing with a terminal neurodegenerative disease called Corticobasal Syndrome (CBS). We are usually a private couple, but we are now compelled to share our unique story. It involves overcoming obstacles that effects all patients who has to go through the pharmaceutial industry to try and save their lives. 

Our Story

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Video Evidence

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Messages to Visitors

A Message to Patients of diseases

A Message to Caretakers 

A Message to Families of Patients

A Message to Pharmaceutical Companies

A Message to Non-Profits & Organizations

A Message to the Media and News Outlets

Gratitude

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I’m Chavonne Sladek, and I’m Don Sladek’s wife. Don is a Vietnam Era Veteran who was stationed in Southeast Asia and proudly served his country. We are not scientists or doctors; we are just regular people dealing with a terminal neurodegenerative disease called Corticobasal Syndrome (CBS). We are usually a private couple, but we are now compelled to share our unique story. It involves overcoming obstacles that effects all patients who has to go through the pharmaceutial industry to try and save their lives.