OUR STORY

Introduction

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Many of you will have a loved one that will have a devastating illness and treatment decisions will need to be made. In all likelihood, there will be one of two paths that you choose:

Preparation for the end of life, or treatment options. These paths are not separate and may be concurrent. You hope that your doctors will offer a cure, but what happens if there isn't one?​

Will you desperately look for clinical trials?
We did. It was the only trial in the world offering treatment, the others were observational.

Now, what happens if the medication actually improves your loved one's condition?

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