TREATING CORTICOBASAL SYNDROME
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​OUR STORY
Palliative Care 2017

Page 6

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In August 2017, Don’s physician told us with love and compassion that we needed to see a palliative care physician. Don was clear about his wishes.  He did not want to spend the rest of his life chasing “snake oil;” treatments full of unproven promises and wasting time with doctors. There would be no resuscitation, feeding tube, or even treatment for pneumonia. We put our affairs in order with a living trust.

​The one concession he made to this disease was that he would donate his brain to the brain bank in the hopes that it would help find a cure after he was gone.  We decided that we would live whatever life he had to the fullest and be grateful for each day.
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THANK YOU

“I would like to thank all of you from the bottom of my heart that took the time to read this site and those that took action concerning my situation with CBS. The clinical trial has helped my quality of life. My goal has always been to help science to help others with this terrible disease. God bless and thank you all.”

​- Don Sladek

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  • Home
  • News
    • Video Evidence
  • How to Help
  • Messages
    • To: Family & Friends
    • To: CBS Patients & Their Families
    • To: Journalists
    • To: Physicians & Scientists
    • To: Politicians & Policy Makers
    • To: Organizations & Charities
    • To: Biogen
  • ABOUT
    • Our Story
    • About Us
    • About CBS
    • About Site
    • About Access
    • About Biogen
  • Contact Us