TREATING CORTICOBASAL SYNDROME
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​OUR STORY
Don After Clinical Trial

Page 10

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We had optimistically hoped that Biogen's drug had turned back Don's clock.  We met with his neurologist in June 2020, and by this time, he has missed six infusions.  She has seen him regress 20-25%. He is losing his ability to regulate his body temperature and is thirsty again.  His balance is starting to be a concern too. 

​I cannot let him die, knowing there is a drug that has worked for him. I don't understand why Biogen's drug worked for Don, but on a scientific level, I believe it warrants further exploration. He IS the volunteer that should be studied, the case subject that proves efficacy. We are pleading with them to revisit their policy and allow him access to their drug BIIB092, Gosuranemab.

Please take the time to learn how you can help in the next page.
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© COPYRIGHT 2020. All rights reserved. Unless attribution otherwise noted.

THANK YOU

“I would like to thank all of you from the bottom of my heart that took the time to read this site and those that took action concerning my situation with CBS. The clinical trial has helped my quality of life. My goal has always been to help science to help others with this terrible disease. God bless and thank you all.”

​- Don Sladek

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  • Home
  • News
    • Video Evidence
  • How to Help
  • Messages
    • To: Family & Friends
    • To: CBS Patients & Their Families
    • To: Journalists
    • To: Physicians & Scientists
    • To: Politicians & Policy Makers
    • To: Organizations & Charities
    • To: Biogen
  • ABOUT
    • Our Story
    • About Us
    • About CBS
    • About Site
    • About Access
    • About Biogen
  • Contact Us