TREATING CORTICOBASAL SYNDROME
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​OUR STORY
Biogen Ends Clinical Trial

Page 9

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Source: https://www.biospace.com/article/biogen-kills-a-neuroscience-program-after-trial-failure/
In December of 2019, Don was examined by 5 neurologists and 2 neuropsychologists who had observed him over the past year. All said they couldn’t believe he was the same man they had seen before. The changes have been remarkable. Two days later we were notified that his trial was terminated.

It took us time to realize that Biogen had halted another trial utilizing BIIB092 because it didn’t meet its endpoint goals. This was the trial for Supernuclear Palsy, called the PASSPORT Trial. Biogen refused to acknowledge Don’s trial because they didn’t sponsor it. They will not grant him access under Compassionate Use or the Right-To-Try Act. We do not know how else to appeal to them. We are pleading with them to re-examine their policy.
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THANK YOU

“I would like to thank all of you from the bottom of my heart that took the time to read this site and those that took action concerning my situation with CBS. The clinical trial has helped my quality of life. My goal has always been to help science to help others with this terrible disease. God bless and thank you all.”

​- Don Sladek

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  • Home
  • News
    • Video Evidence
  • How to Help
  • Messages
    • To: Family & Friends
    • To: CBS Patients & Their Families
    • To: Journalists
    • To: Physicians & Scientists
    • To: Politicians & Policy Makers
    • To: Organizations & Charities
    • To: Biogen
  • ABOUT
    • Our Story
    • About Us
    • About CBS
    • About Site
    • About Access
    • About Biogen
  • Contact Us